tampabay.com

Illness took limbs, but life endures

By ASSOCIATED PRESS
Published May 20, 2007


SANFORD - Claudia Mejia cannot give the hugs most mothers bestow on their children. Nor can she grab her 2-year-old son by the hand or place him on her lap. She cannot tuck her 9-year-old into bed or walk him to the school bus stop.

Motherhood for Mejia, 25, was redefined two years ago when a medical nightmare left her without arms and legs. She contracted a flesh-eating bacteria around the time she gave birth to her youngest son, Matthew, at South Seminole Hospital in Longwood, forcing doctors to amputate her limbs to save her life.

The horror that began then still unfolds for Mejia, who has pleaded with hospital officials for two years to turn her medical records over - something a judge just ordered.

She and her lawyers believe she either got the infection - "group A strep" - at the hospital or its doctors and nurses failed to quickly and properly treat it. They are suing the hospital and its parent company, Orlando Regional Healthcare System, seeking unspecified damages.

Orlando Regional, however, maintains Mejia's infection was acquired elsewhere and that she was treated properly. In 187, 000 births since 1988 at the nonprofit hospital system, comprised of seven medical facilities, Mejia is the only reported case of invasive group A strep, Jennings Hurt III, the hospital's attorney, said.

"Thank God it's rare, " Hurt said. "The hospital and everybody associated with the hospital have great sympathy for what happened to her. It's truly tragic."

Invasive group A strep infects about three people in every 100, 000 in the United States each year, said Dr. Dennis Stevens, chief of the Infectious Disease Section at the Veterans Affairs Medical Center in Boise, Idaho. Of those, about a third reach the flesh-eating stage, named necrotizing fasciitis, that often requires amputation, he said. The flesh-eating stage is fatal in 30 to 70 percent of its victims, Stevens said.

The three days following the April 28, 2005, birth of her son are troubling, Mejia said. After she checked into the Longwood hospital and gave birth to a healthy baby boy at 7 a.m., a fever set in, medical records show.

A nursing document reveals her temperature was high throughout the day, reading 100.6 degrees at one point. Shaking and chills soon followed, and Mejia complained of severe pain in her stomach and a burning sensation when she urinated - all signs of a potential infection, her attorney, Ron Gilbert, said.

The nurses and midwives deny Mejia ever reported any severe pain, Hurt said.

"A 100.6 temperature is very, very, very low grade, " Hurt said. "A person with group A strep with toxic shock syndrome has very high, spiking temperatures. Ms. Mejia's symptoms were inconsistent with that."

As Mejia's body tried to fight off the deadly bacteria, nurses treated her with minor painkillers Tylenol and ibuprofen, medical officials confirmed.

The hospital's care was appropriate and reasonable, Hurt said. The over-the-counter drugs, however, could not fight a disease commonly treated with an aggressive antibiotic regimen delivered intravenously.

The hospital began the process of discharging Mejia the next morning, but her then-boyfriend, Tim Edwards, complained.

"She's too sick to come home, " he said. Mejia writhed in pain and began to vomit, still with nothing more than mild pain relievers and anti-inflammatory medications, Edwards said.

Doctors finally stepped in the next afternoon and ordered emergency surgery to remove her uterus, but the invasive bacteria had now entered her bloodstream. She went into toxic shock, her kidneys began to shut down and the blood flow to her arms and legs ceased, causing gangrene to set in, records show.

She was rushed to Orlando Regional Medical Center where doctors informed her that she would die if her limbs were not amputated immediately.

"I wanted to die, " she said. "I really wanted to die. I couldn't go on living without arms and legs."

Edwards recounts his plea to his girlfriend of two years and the mother of his son: "Keep fighting. And when you're able, marry me."

Mejia said yes to life and marriage. Doctors amputated her legs above her knees, the left arm above the elbow and her right arm just below the elbow. Eight days later, Mejia and Edwards exchanged vows in the intensive care unit. She wears her wedding band on a chain around her neck.

Two years later, their love and family remain strong.

Edwards begins each day at 4 a.m. He carries his wife, who without limbs weighs 84 pounds, and bathes her. Nine-year-old Jorge, a child from a previous relationship, cooks breakfast for the family.

Mejia has learned to brush her teeth, answer the telephone and surf the Internet. She eats by attaching a fork to a fabric band on her right arm above her elbow. She is motivated to walk again with the help of prosthetics.

Edwards asked her to remarry him last year on Christmas Eve.

"Next time she's going to walk down the aisle, " he said.